Harmonist/IeDEA: Designing Consortium Tools for Collaboration and Data Sharing

About this Class

The NIH-funded International epidemiology Databases to Evaluate AIDS (IeDEA) consortium is a global HIV observational research network with seven geographic regions and over 350 participating HIV care and treatment clinics. The data scientists and data managers of IeDEA established the Harmonist Project to develop informatics-driven methodologies, data standards, and tools to catalyze IeDEA data sharing and scientific collaboration. In this presentation, Drs. Duda and Lewis will share the process and outcomes and demos of generalizable tools built on REDCap and R Shiny. They will also present ongoing adaptations of the software with research partners, and potential uses for other large observational research networks. About the Speakers: Stephany Duda, Ph.D., is an Associate Professor of Biomedical Informatics in the School of Medicine at Vanderbilt University. Her work focuses on clinical research informatics and global health informatics, particularly issues in data capture, data quality, and international observational databases. She has developed the NIAID-funded Harmonist Project to support data sharing, data quality control, and research portfolio coordination for international research consortia. Judith Lewis, Ph.D., is a biomedical engineer whose past research focused on biomedical instrumentation, image analysis, and interactive, image guided surgery. She is now applying those engineering design principles to the development of reproducible bioinformatics workflows for data quality and report generation in international observational research networks.